Summary:
Swimming is fun and valuable, but underwater disorientation is common for people with Usher Syndrome types 1 and 3, due to balance and vision challenges.
- If you’re unsure which way is up, exhale gently to release air bubbles — bubbles always float upward, guiding you to the surface.
- Move slowly and stay calm to avoid worsening disorientation.
- In low visibility, pay attention to ear pressure:
- It increases as you go deeper.
- It decreases as you move toward the surface.
- Practice in shallow or familiar water to build confidence and stay safe.
Details:
Swimming is an enjoyable and empowering activity, but for people with Usher Syndrome types 1 (USH1) and 3 (USH3), underwater disorientation can be a real challenge. Because Usher Syndrome often affects both balance (vestibular function) and vision, it can be hard to determine which direction is up when submerged.
A reliable method is to produce air bubbles by gently exhaling through your nose or mouth. These bubbles always rise to the water’s surface, providing a visual cue (if vision allows) and even a tactile cue as they brush past your face or hands. You can practice this technique in a pool: take a breath, go underwater, and gently let a small stream of air out—watch or feel the bubbles float upward.
If visibility is low or vision is limited, use your sense of pressure. As you go deeper, the pressure on your ears and body increases. You may feel your chest slightly compressed, or notice a tightness in your ears. As you move upward, this pressure gradually eases. This change can help you judge which direction is up, especially when paired with calm, slow movements.
To stay safe, it’s important to stay calm, move slowly, and practice in shallow or familiar water environments. Working with a swim instructor who understands sensory and balance differences can also help you build confidence and learn orientation techniques.
No comments:
Post a Comment