The Usher Syndrome Awareness Day falls on September 19 this year. It is a global moment dedicated to uniting our community, fostering peer connection, and raising USH awareness across the globe.
USH DAY 2026 webpage: Look here for activities around the world.
https://www.usher-syndrome.org/resources/usher-syndrome-awareness-day-2026-copy.html
USH India activities this September:
…Parents-to-Parents Zoom Meetup on September 5, hosted by Divya Goel and her mother Aruna.
…Sharing of books, articles, stories related to Usher. Anyone can share.
What can YOU do to help increase USH awareness?
Here are a few suggestions:
…Talk to your immediate family members about Usher. Increase their awareness. This will make conversations about Usher more comfortable in the future.
…Read an article about Usher. Increase your own awareness.
…Tell a close relative or a friend about Usher. It is good for your mental health.
…Share your lived experiences and success stories (no matter how small they may seem) with the USH India group, or submit your story in the USH DAY 2026 webpage (there is a link there).
…Most importantly, STAY POSITIVE!
Tag Us Worldwide. On September 19, Tag us @UsherCoalition on Instagram and BlueSky, and Usher Syndrome Coalition on Facebook and LinkedIn. We will be sharing local proclamations, meetups, and stories happening around the world all day long on our USH DAY 2026 page.