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Tuesday, February 24, 2026

The Supplement Nobody Mentioned (informative essay by Mark G. Hubers)

TITLE: The Supplement Nobody Mentioned

AUTHOR: Mark G. Hubers

DATE: 2026 February 23

LINK FOR THE ESSAY: https://ushengineer.substack.com/p/the-supplement-nobody-questioned


GIST: In 1993, a study on Retinitis Pigmentosa patients concluded that taking vitamin A supplements slowed vision loss. But in 2023, a follow-up study from the same institution concluded that vitamin A supplements are actually HARMFUL for USH2A, while for other types for Usher, vitamin A does NOT help. The 2023 follow-up study analyzed the findings separately by gene, while the 1993 study did not.


Read the full essay for details and a list of sources.

 

Sunday, February 1, 2026

Access Usher Syndrome Resources in Any Language

You can now read both this blog and the main Usher Syndrome Coalition website in any language
We’ve added a Google Translate button at the top of every page, making it easier than ever to access and share information worldwide.

Explore here:

Usher Syndrome Awareness Day on 19 September 2026

  The Usher Syndrome Awareness Day falls on September 19 this year. It is a global moment dedicated to uniting our community, fostering pe...