This directory aims to document all companies and organizations which could provide services to the Usher syndrome community in India.
Disclaimer: USH India does not endorse any of the organizations listed in this document. The sole purpose of this list is to provide information, and does not imply approval or affiliation. We recommend conducting your own research and due diligence before engaging with any of the organizations mentioned.
INDEX
- SEARCH TERMS
- GOVERNMENT OF INDIA ORGANIZATIONS
- ONLINE ONLY ORGANIZATIONS
- ANDHRA PRADESH
- BIHAR
- DELHI
- GOA
- GUJARAT
- HARYANA
- HYDERABAD
- JAMMU & KASHMIR
- KARNATAKA
- KERALA
- KOLKATA
- MADHYA PRADESH
- MAHARASHTRA
- MEGHALAYA
- PUNJAB
- TAMIL NADU
- TELANGANA
- UTTAR PRADESH
- WEST BENGAL
SEARCH TERMS
- deaf, blind, deafblind
- retinitis pigmentosa
- genetic testing, genetic counseling
- news
- research, treatment, ayurvedic
- school, education, student
- ISL training, ISL course
- orientation, training, rehabilitation
- employment
- sign language, interpreter
- assistive technology
GOVERNMENT OF INDIA ORGANIZATIONS
Accessible India
- Focus:
- Address:
- Website:
- Social Media: Twitter (@MSJE_AIC)
- Contact Info:
- Services:
Department of Empowerment of Persons with Disabilities (DEPWD), Ministry of Social Justice and Empowerment (MSJE)
- Focus: all disabilities
- Address:
- Website: https://disabilityaffairs.gov.in/content/
- Social Media: Twitter (@socialpwds)
- Contact Info:
- Services:
Indian Sign Language Research and Training Centre (ISLRTC), Department of Empowerment of Persons with Disabilities
- Focus: deaf
- Address: New Delhi
- Website: http://islrtc.nic.in
- Social Media: https://www.youtube.com/@islrtcnewdelhi4069
- Contact Info: islrtcnewdelhi@gmail.com
- Services:
- Diploma in ISL Interpretation (DISLI), Diploma in Teaching ISL (DTISL)
- NCERT Books in ISL
- ISL Dictionaries
- directory of ISL interpreters
- directory of deaf schools in India (https://drive.google.com/file/d/1xiQ_aDf-68W-6yehow0qMl5gGZirdNB_/view, https://drive.google.com/file/d/1oOgYWNSeCMmuadCipX_mmQQHOLcZLTum/view)
- links to digital libraries
National Handicapped Finance and Development Corporation (NHFDC)
- Focus: all disabilities; financial support
- Address:
- Website: http://www.nhfdc.nic.in/
- Social Media:
- Contact Info:
- Services:
- Provides loans to persons with disabilities to start any activity contributing to income generation, such as training before employment
- Runs the Divyangjan Swavalamban Yojana Scheme For Persons With Disabilities
- Education loans, Entrepreneurship loans
National Health Portal (NHP)
- Focus: health information on rare diseases
- Address:
- Website: https://www.nhp.gov.in/disease/non-communicable-disease/rare-diseases
- Social Media:
- Contact Info:
- Services:
- a disorder is defined rare in India when it affects fewer than 1 in 2500 individuals. (Implies that Usher syndrome is considered a rare disorder in India)
- hosted by Centre for Health Informatics (CHI), set up at National Institute of Health and Family Welfare (NIHFW), by the Ministry of Health and Family Welfare (MoHFW), Government of India.
- The Indian Rare Disease Registry
National Institute For Empowerment of Persons with Multiple Disabilities (Divyangjan) (2005)
- Focus: multiple disabilities
- Address: Chennai
- Website: https://niepmd.tn.nic.in/
- Social Media:
- Contact Info:
- Services:
- offers courses such as
- Diploma in Education (D.Ed.) Special Education (Deafblindness)
- Bachelor of Education (B.Ed.) Special Education (Deafblindness)
- Master of Education (M.Ed.) Special Education (Multiple Disabilities)
- orientation/sensitization programmes for policy makers, government organizations, NGOs, administrators, etc.
- offers courses for rehabilitation professionals such as primary school teachers
- overseas Composite Regional Centers (CRC) for skill development, rehabilitation and empowerment of PwDs in many states. CRCs offer clinical services, parent training, outreach activities, ADIP assessment and distribution camps, etc
National Trust, Ministry of Social Justice and Empowerment
- Focus: multiple disabilities
- Address:
- Website: https://thenationaltrust.gov.in
- Social Media:
- Contact Info:
- Services:
- set up under the "National Trust for the Welfare of Persons with Autism, Cerebral Palsy, Mental Retardation and Multiple Disabilities” Act (Act 44 of 1999)"
- lists of schemes
- lists National Resource Centers that display and demonstrate assistive technologies and their costs under the Sambhav Scheme (click here)
- lists trained caregivers (click here)
Rehabilitation Council of India
- Focus: all disabilities
- Address: New Delhi
- Website: http://www.rehabcouncil.nic.in/
- Social Media:
- Contact Info:
- Services: "regulate and monitor services given to person with disability, to standardise syllabi and to maintain a Central rehabilitation register of all qualified professionals and personal working in the field of rehabilitation and special education"
Vikaspedia Portal, Ministry of Electronics and Information Technology
- Focus: provide digital information for social development
- Address: Hyderabad
- Website: www.vikaspedia.in
- Social Media:
- Contact Info:
- Services:
ONLINE ONLY ORGANIZATIONS
Association of Sign Language Interpreters (ASLI, 2007)
- Focus: sign language interpretation
- Address:
- Website: http://signasli.com
- Social Media: Facebook page
- Contact Info: contactsignasli@gmail.com
- Services: sign language interpreter service, training for sign language interpreters. Hourly interpretation rates are posted on their website.
DEAFWOMENTOO
- Focus: deaf
- Address:
- Website:
- Social Media: https://www.facebook.com/deafwomentoo
- Contact Info:
- Services: online news
Diversity and Equal Opportunity Centre (DEOC) ***
- Focus: all disabilities, consulting
- Address:
- Website: https://deoc.in/
- Social Media:
- Contact Info: https://deoc.in/contact-us/
- Services: inclusion and accessibility consulting service, training and sensitization services
EarGuru
- Focus: deaf and hearing impaired
- Address:
- Website: www.earguru.in
- Social Media:
- Contact Info:
- Services:
- Raise awareness. Blogs and news related to hearing loss, usher syndrome
- Helpline for questions on audiology, speech therapy, cochlear implants, hearing aids, etc
- List of government schemes for deaf and hearing impaired
- List of organizations in India offering training and employment for persons with disabilities
- List of jobs for deaf and hard of hearing
EnableMart (year)
- Focus: all disabilities
- Address:
- Website: https://enablemart.in/
- Social Media:
- Contact Info:
- Services: online marketplace for braille devices, tactile learning tools, assistive technologies for daily living (Eg. white cane, braille watches, etc)
Inspiring Educative Creativity Games for the Deaf (IECGD)
- Focus: deaf
- Address:
- Website:
- Social Media: https://www.facebook.com/iecgd21/
- Contact Info: iecgd2021@gmail.com
- Services: hosts quiz shows for deaf children and adults
NEWZHOOK.COM
- Focus: all disabilities, news, inclusion
- Address:
- Website: http://newzhook.com/
- Social Media:
- Contact Info: info@newzhook.com
- Services: online news, disability stories
SIGNABLE COMMUNICATIONS (2019)
- Focus: deaf
- Address:
- Website: https://signable.live/
- Social Media:
- Contact Info: contact@signable.live
- Services: on-demand ISL interpreter service. Uses Video Remote Interpretation (VRI) and Video Relay Service (VRS). Supports 10+ Indian languages
Sign Medium (2018)
- Focus: deaf, Indian Sign Language
- Address:
- Website: https://signmedium.in
- Social Media:
- Contact Info:
- Services:
- make all courses (education, workplace learning, skill-building training, entrepreneurship training) accessible to the deaf community via sign language
- offers the following in ISL: tuition classes, recipes, workshops (e.g., resume writing), summaries of famous books, etc.
- offline courses (many locations) and online courses
Talking Hands (2013)
- Focus: Indian Sign Language
- Address:
- Website: http://talkinghands.co.in/
- Social Media:
- Contact Info:
- Services: ISL dictionary, ISL courses
ANDHRA PRADESH
Deafblind State Centre, Uma Educational and Technical Society (DbSC)
- Focus: deafblind
- Address:
- Website: https://uetsindia.org/Deafblind-State-Centre
- Social Media:
- Contact Info: info@uetsindia.org
- Services: vocational rehabilitation, special education, early detection, baby screening, raise awareness through seminars, centre and home-based services, clinical and functional assessment, provide assistive devices and aids, Diploma in Special Education Deafblind,
Indian Forum for Rehabilitation and Assistive Technology (IFRA)
- Focus: all disabilities
- Address: Anantapur
- Website: https://www.ifraindia.click/
- Social Media: https://www.facebook.com/Ifra2021/
- Contact Info:
- Services: advocacy, Webinars on issues affecting persons with disabilities (PwDs). Training programs
Vision-Aid India (2004)
- Focus: blind, visually impaired
- Address: Visakhapatnam
- Website: https://visionaidindia.org/
- Social Media:
- Contact Info:
- Services:
- Orientation and Mobility Training
- Together with Smart Health Global Technologies, developed and produced the Smart Vision Glasses
BIHAR
Bihar Association of the Deaf
- Focus: deaf
- Address: Patna
- Website:
- Social Media: https://www.facebook.com/bad.patna/
- Contact Info:
- Services:
DELHI
Action for Ability Development and Inclusion (AADI, 1978)
- Focus: all disabilities
- Address: New Delhi
- Website: https://aadi-india.org/
- Social Media:
- Contact Info:
- Services:
- a National Resource Centre funded by National Trust. Displays and demonstrates assistive technologies. Details here
- education services
- develops individualized care plans for PwDs
- parent training
- program for young adults, interships
- School for Rehabilitation Sciences. Conducts Post Graduate Diploma in Special Education, Diploma in Developmental Therapy
All India Federation of the Deaf (AIFD, 1955)
- Focus: deaf, mostly children??
- Address: New Delhi
- Website: https://www.aifdeaf.org/index.html
- Social Media:
- Contact Info:
- Services: training center, training programs, hostel
All India Foundation of Deaf Women (AIFDW, 2014)
- Focus: deaf women and children
- Address: New Delhi and Mumbai
- Website: www.aifdw.in
- Social Media:
- Contact Info: info@aifdw.in
- Services: training, competitions, social work
All India Sports Council of the Deaf
- Focus: deaf
- Address:
- Website: http://www.aiscd.org/index.php
- Social Media:
- Contact Info: aiscd1965@gmail.com
- Services:
Assistive Technologies Group IIT Delhi (Assistech)
- Focus: assistive technology research and product development for visually impaired
- Address: New Delhi
- Website: https://assistech.iitd.ac.in/index.php
- Social Media:
- Contact Info: assistech.iitd@gmail.com
- Services: researches and produces affordable assistive technology products for the visually impaired
ASTHA
- Focus: all disabilities
- Address: New Delhi
- Website: https://asthaindia.in/
- Social Media:
- Contact Info: aarthindia@gmail.com
- Services: runs a National Disability Helpline, community-based rehabilitation programs, workshops, research, advocacy
Caritas India CBR (1996)
- Focus: all disabilities
- Address: New Delhi
- Website: https://www.caritasindia.org/community-based-rehabilitation-cbr/
- Social Media:
- Contact Info:
- Services: community-based rehabilitation
Delhi Association of the Deaf
- Focus: deaf adults?
- Address: New Delhi
- Website:
- Social Media: https://www.facebook.com/delhiassociationofthedeaf/
- Contact Info:
- Services:
Delhi Foundation of Deaf Women (DFDW)
- Focus: deaf women
- Address: New Delhi
- Website: http://www.dfdw.net/
- Social Media:
- Contact Info:
- Services:
iClinix
- Focus: retinitis pigmentosa
- Address: Delhi
- Website: https://iclinix.in/
- Social Media:
- Contact Info:
- Services:
IGENOMIX
- Focus: genetic testing, genetic counseling
- Address: New Delhi
- Website: https://www.igenomix.co.in/
- Social Media:
- Contact Info: info.india@igenomix.com
- Services: genetic testing for Usher syndrome
National Association for the Blind Delhi (NAB Delhi, 1979)
- Focus: blind, blind with multiple disabilities, deafblind
- Address: Delhi
- Website: https://www.nabdelhi.in/
- Social Media: Facebook page
- Contact Info: https://www.nabdelhi.in/contact-us
- Services: inclusive education services for deafblind, braille and large print press, school for blind, centre for multiple disabilities, digital library for people with print disabilities, hostel for blind children, technology training, vocational training
National Association of the Deaf (NAD)
- Focus: Deaf children and adults
- Address: New Delhi
- Website: http://nadindia.org/
- Social Media:
- Contact Info: secretary@nadindia.org
- Services: advocates for the rights for the deaf in the areas of employment, sign language interpreter service, education, accessibility, etc
National Centre for Promotion of Employment For Disabled People (NCPEDP, 1996) ***
- Focus: all disabilities, advocacy
- Address: New Delhi
- Website: https://ncpedp.org/
- Social Media:
- Contact Info:
- Services: advocacy, employment, accessibility, education, policy making
- Helpline for PwDs in need of legal aid and support
- NCPEDP – Javed Abidi Fellowship on Disability – leadership development program
- Comments on the National Education Policy NEP2020
- Disability News and Information Service (DNIS)
Sanket Foundation
- Focus: deaf, all ages
- Address: New Delhi
- Website: http://sanketfoundation.org/ (problem with link)
- Social Media: https://www.facebook.com/sanketfoundation/
- Contact Info:
- Services:
Sarthak Educational Trust
- Focus: all disabilities, all ages
- Address: New Delhi 110066
- Website: http://www.sarthakindia.org/
- Social Media:
- Contact Info: sarthakedu@gmail.com
- Services:
- For adults: 23 skill building centers across India, training and employment of PwDs,
- For kids: early intervention, inclusive education, rehabilitate school going kids with disability in mainstream schools through stakeholder sensitization and remedial classes.
- NAAI ( National Abilympics Association of India), NGO Capacity Building Program, Accessible Event Management Support, Online Parents Interaction Forum, India Disability Empowerment Alliance (IDEA)
School of Open Learning, University of Delhi (SOL-DU, 1962)
- Focus: distance education
- Address: New Delhi
- Website: https://web.sol.du.ac.in/home
- Social Media:
- Contact Info:
- Services: In 2023, SOL-DU is planning to offer inclusive and accessible education to Persons with Disabilities (PwDs)
GOA
Caritas Centre for Deafblind (2012)
- Focus: deafblind children and young adults
- Address: Saligao and Borda-Margao, Goa
- Website:
- Social Media: https://www.facebook.com/DeafblindProjectCaritasGoa/; https://www.instagram.com/caritascentrefordeafblind/
- Contact Info: caritas.sensegoa@gmail.com
- Services:
- early intervention, parent training, education, rehabilitation
- special education, physiotherapy, speech therapy, occupational therapy, vocational training, medical and nutrition support and clinical assessment.
- https://goaninsider.com/social-sector/deafblind-ngo-in-goa/
National Association for the Blind Goa (NAB Goa, 1983)
- Focus: visually impaired
- Address: Tiswadi Goa
- Website: http://www.nabgoa.org/
- Social Media:
- Contact Info:
- Services:
GUJARAT
Blind People's Association
- Focus: visually impaired
- Address: Ahmedabad, Gujarat
- Website: https://bpaindia.org/
- Social Media:
- Contact Info:
- Services:
- Vocational Training
Deaf Association of Vadodara (aka Mook Badhir Mandal)
- Focus: deaf
- Address: Vadodara, Gujarat
- Website: www.indiandeaf.org
- Social Media: www.youtube.com/@MBMVadodara
- Contact Info: info@indiandeaf.org
- Services:
- News in ISL
- Workshops, training courses
- Deaf tourism
- tutorials in ISL: ISL dictionary, baby ISL, booking train ticket, etc
Global Institute of Stem Cell Therapy and Research (Giostar, 2000)
- Focus: stem cell therapy
- Address: Ahmedabad (Gujarat), other branches
- Website: https://pharma.giostarindia.com/therapy/retinal-transplant/
- Social Media: YouTube
- Contact Info: contact@giostar.com
- Services: stem cell therapy for certain sub-types of retinitis pigmentosa
National Association for the Blind, Valsad District Branch (NAB Valsad, 1984)
- Focus: visually impaired, deafblind
- Address: Valsad Gujarat
- Website: https://www.valsadnab.org/
- Social Media:
- Contact Info:
- Services:
Retina Foundation & Eye Research Center
- Focus: retinitis pigmentosa; vision research
- Address: Ahmedabad, Gujarat
- Website: http://www.retinafoundation.com
- Social Media:
- Contact Info: eyes@retinafoundation.com
- Services: vision research, eye hospital
Retina Treatment in Surat- EYE Q India
- Focus: retinitis pigmentosa
- Address: Surat
- Website: https://www.eyeqindia.com/
- Social Media:
- Contact Info:
- Services: vision treatment
Sense International India (1997) ***
- Focus: deafblind children and adults
- Address: Gujarat, with branches and partnerships all over India
- Website: http://www.senseintindia.org/
- Social Media:
- Contact Info: info@senseintindia.org
- Services: Full range of services
TorchIt (2016)
- Focus: product developer for visually impaired
- Address: Ahmedabad, Gujarat
- Website: www.mytorchit.com
- Social Media: YouTube
- Contact Info:
- Products:
- Saarthi Smart Assistive Aid – attachment to the white cane to detect obstacles near the waist level. Complements the white cane which detects obstacles in the ground level
- Jyoti AI Smart Glasses -- identifies objects in the surroundings, currencies, colours, reads printed/handwritten material in many languages, etc.
- Jyoti AI Reader - reads printed/handwritten material in 60+ global languages and produces output in braille, text, etc
- TorchIt Braille Learning Magnetic Board
- TorchIt White Cane
- etc
HARYANA
Haryana Welfare Society For Persons with Speech and Hearing Impairment (1971)
- Focus: hearing impaired
- Address: Haryana
- Website: http://www.hwspshi.org/
- Social Media:
- Contact Info: hws4speechhearing@gmail.com
- Services: Early Intervention, School Education, Accessibility, RCI approved teacher training (D.Ed. HI & DTISL), Deaf Hunar (Skill training), Counselling, Digital Sign Language Lab, ISL Club and ISL textbooks
HYDERABAD
Advanced Retina Care
- Focus: retinitis pigmentosa
- Address: Panjagutta, Hyderabad
- Website: http://www.advancedretinacare.com/index.html
- Social Media:
- Contact Info:
- Services: vision treatment
DNA Labs India
- Focus: genetic testing, genetic counseling
- Address: Hyderabad, Mumbai, Delhi, Kolkata, Chennai, Bangalore, Ahmedabad, Pune, etc.
- Website: https://dnalabsindia.com/
- Social Media:
- Contact Info: info@dnalabsindia.com
- Services: https://dnalabsindia.com/test/nx-gen-sequencing-usher-syndrome-test
Indian Eye Research Group (IERG, 1992) (a.k.a. ARVO-INDIA)
- Focus: eye research within India
- Address: Hyderabad
- Website: www.arvo.org
- Social Media:
- Contact Info: ierg@lvpei.org
- Services:
- ARVO = Association for Research in Vision and Ophthalmology, an international organization based in Maryland USA
- ARVO-INDIA Conference – annual meeting; a platform for exchange of ideas among eye researchers in India and brings together those involved in different areas of basic and clinical eye research
- 2021 conference schedule included Usher presentation
- Journals: https://jov.arvojournals.org/; https://iovs.arvojournals.org/; https://tvst.arvojournals.org/
L V Prasad Eye Institute ***
- Focus: eye research, treatment, education, etc
- Address: Hyderabad
- Website: https://www.lvpei.org/
- Social Media: https://www.facebook.com/lvpei.india
- Contact Info: communications@lvpei.org
- Services:
- Eye hospital
- training of eye doctors (e.g. Low Vision Awareness Program, https://www.lvpei.org/events/2022/43rd-lap/schedule-brochure.pdf)
- Research: Hyderabad Eye Research Foundation (HERF)
- research on Usher syndrome
MapMyGenome
- Focus: genetic testing, genetic counseling
- Address: Hyderabad and Telangana and Delhi
- Website: https://mapmygenome.in
- Social Media:
- Contact Info:
- Services:
- genetic testing, genetic counseling
- Pooja Ramchandran, VP Genetic Counseling. https://mapmygenome.in/blog/ushering-in-genetic-evaluation-for-usher-syndrome
JAMMU & KASHMIR
National Association for the Blind, Jammu & Kashmir (NAB Jammu & Kashmir)
- Focus: visually impaired, deafblind
- Address: Jammu
- Website: http://www.nabjandk.com/
- Social Media:
- Contact Info:
- Services:
KARNATAKA
Centre for Eye Genetics and Research, The Battu Eye Centre
- Focus: low vision, visual impairement, retinitis pigmentosa
- Address: Bangalore
- Website: https://www.cegr.org/
- Social Media:
- Contact Info:
- Services: retinal degenerative diseases, inherited retina diseases (RD), hospital, healthcare services, research, genetic counseling, genetic testing, low vision rehabilitation, school outreach, patient advocacy, etc.
Community Based Rehabilitation Network (1992)
- Focus: all disabilities
- Address: Bangalore
- Website: https://cbr-network.org/
- Social Media:
- Contact Info:
- Services:
- rehabilitation technology, eLearning materials, courses
- develop resource materials on rehabilitation for parents, teachers, health workers.
Composite Regional Centre for Skill Development, Rehabilitation & Empowerment of Persons with Disabilities (Divyangjan), Davanagere
- Focus: all disabilities
- Address: Davanagere
- Website: https://crcdavanagere.nic.in/
- Social Media:
- Contact Info:
- Services: Orientation and Mobility Training, Vocational Training, offers Diploma in Education - Special Education (Hearing Impairment)
EnAble India
- Focus: all disabilities
- Address: Bengaluru
- Website: http://www.enableindia.org/
- Social Media:
- Contact Info: helpdesk@enableindia.org
- Services:
- job training
- job placement
- Orientation and mobility training, including the use of a cane and TorchIt device
- Assistive technology training. Computer training and screen reader training for students
Indian Speech-Language and Hearing Association, National Association of Speech Language and Hearing Professionals (ISHA, 1967)
- Focus: research
- Address: Mysore, Karnataka
- Website: www.ishaindia.org.in
- Social Media:
- Contact Info:
- Services:
- professional association of speech-language pathologists, audiologists, and speech, language, and hearing scientists in India and internationally
- publishes research papers and journals (Journal of Indian Speech and Hearing Association). Includes topics on early identification and rehabilitation of persons with hearing and communication disorders
- organizes conferences and trainings
Medgenome Labs
- Focus: genetic testing, genetic counseling
- Address: Bangalore
- Website: https://medgenome.com
- Social Media:
- Contact Info:
- Services: genetic testing, genetic counseling
Mitra Jyothi (1990)
- Focus: blind, visually impaired
- Address: Bangalore
- Website: https://www.mitrajyothi.org/
- Social Media:
- Contact Info: admin.office@mitrajyothi.org
- Services: Teach braille, Convert books into braille and audio format (useful for students), Talking/Audio book library, Braille books, Braille Transcription, Education, Computer Training, Counseling, Communication, Technology, Women Empowerment, Independent Living Skills Training, Orientation and Mobility training, Job Placement, Building awareness
National Association for the Blind Karnataka (NAB Karnataka)
- Focus: visually impaired, deafblind
- Address: Bangalore
- Website: https://nabkarnataka.org/
- Social Media:
- Contact Info:
- Services:
Organization for Rare Diseases - India (ORDI)
- Focus: rare diseases
- Address: Bengaluru, Karnataka
- Website: https://ordindia.in/
- Social Media:
- Contact Info: contactus@ordindia.in
- Services:
- advocates for mandatory newborn screening, research, drug development
- contributes to development and implementation of public policies for rare diseases such as Rare Disease Policy and Orphan Drug Policy
- collaborates with rare disease organizations in India and worldwide
- Usher syndrome page (click here)
Retina Institute of Karnataka
- Focus: retinitis pigmentosa
- Address: Karnataka
- Website: http://www.retinainstitute.org/index.html (not working)
- Social Media:
- Contact Info:
- Services:
Smart Health Global Technologies
- Focus: visually impaired, assistive technology
- Address: Bangalore
- Website: https://shgtechnologies.com/
- Social Media:
- Contact Info:
- Services: developer of Smart Vision Glasses, and Smart Low Vision Glasses
KERALA
Good Samaritan Resource Center
- Focus: deafblind
- Address: Cherpunkal, Kerala
- Website: https://mutholathnagar.com/samaritan.html
- Social Media:
- Contact Info:
- Services: the state learning center for deafblindness, vocational training,
National Association For The Blind Kerala (NAB Kerala)
- Focus: blind, deafblind, multiple disabilities
- Address:
- Website: https://www.nabkerala.org/
- Social Media:
- Contact Info: nabkeral@gmail.com
- Services: rehabilitation, advocacy, prevention, counseling, training, education
National Institute of Speech and Hearing (NISH, 1997)
- Focus: deaf
- Address: Thiruvananthapuram
- Website: https://www.nish.ac.in/
- Social Media:
- Contact Info:
- Services: early intervention, assistive technology, education, training, Online Course on ISL
OmedaCart
- Focus: all disabilities, e-commerce
- Address: Kerala
- Website: www.omedacart.com/
- Social Media:
- Contact Info: omedacart@gmail.com
- Services: an e-commerce website where people with disabilities can sell their products
Sreedhareeyam Eye of Ayurveda
- Focus: ayurvedic eye treatment, retinitis pigmentosa
- Address: Kerala, with branches in Mumbai, Bangalore, etc
- Website: https://sreedhareeyam.com/
- Social Media: https://youtu.be/uOt8AvJqWr0
- Contact Info:
- Services: ayurvedic treatment for retinitis pigmentosa
KOLKATA
West Bengal Youth Association of the Deaf
- Focus: deaf children
- Address: Kolkata
- Website:
- Social Media: https://www.facebook.com/wbyad/
- Contact Info:
- Services:
MADHYA PRADESH
Deaf Can Foundation
- Focus: deaf
- Address: Bhopal
- Website:
- Social Media: https://www.facebook.com/DeafCanFoundation/
- Contact Info: dcfbpl@gmail.com
- Services:
Indian Sign Language Interpreters Association (ISLIA, 2008)
- Focus: deaf
- Address: Madhya Pradesh
- Website:
- Social Media: https://www.facebook.com/islia.india/
- Contact Info: infoislia@gmail.com
- Services: sign language interpreter service
- ISL course in partnership with IDBA (Indore Deaf Bilingual Academy)
Indore Deaf Bilingual Academy (IDBA)
- Focus: deaf community
- Address: Indore, Madhya Pradesh
- Website:
- Social Media: https://www.facebook.com/idba71
- Contact Info: mbsindore71@yahoo.com
- Services:
- DTISL Diploma in Teaching Indian Sign Language (For Deaf) – 2 year course
- DISLI Diploma in Indian Sign Language Interpretation (For Hearing) – 2 year course
- Basic Indian Sign Language Online Classes (contact: islidba09@gmail.com)
- school
- offers computer training
Retina Speciality Eye Hospital
- Focus: retinitis pigmentosa
- Address: Indore, Madhya Pradesh
- Website: http://www.retinaspecialityhospital.com/
- Social Media:
- Contact Info:
- Services: eye hospital
SensoryALL
- Focus: accessibility
- Address: Indore (Madhya Pradesh), Chennai (Tamil Nadu)
- Website: https://sensoryall.in/
- Social Media:
- Contact Info:
- Services: accessibility services for people with neurodiversity. Might be useful to those with both Usher and a learning disability.
MAHARASHTRA
Access for ALL
- Focus: blind
- Address: Andheri (W), Mumbai
- Website: http://www.accessforall.co/
- Social Media:
- Contact Info: reachaccessforall@gmail.com
- Services: consultants for making a place accessible; architecture and accessibility consultation for sites of social significance (museums, monuments, art fairs, etc), workspace inclusivity, assistive products (tactile paintings, descriptive script writing for audio guides), lectures on design, Braille tactile kits, etc.
Ali Yavar Jung National Institute of Speech & Hearing Disabilities (1983) ***
- Focus: Deaf
- Address: Bandra (West) Mumbai, plus other states
- Website: http://ayjnihh.nic.in/
- Social Media:
- Contact Info: ayjnihh-mum@nic.in
- Services: lots of services
- Rehabilitation, education, early intervention, etc
- Education – diploma courses, etc
- Diploma in Hearing, Language Speech (DHLS)
- Diploma in Education Special Education (Hearing Impairment) [D.Ed.Spl.Edu.(HI)]
- Diploma in Indian Sign Language Interpreter Course [DISLIC]
- Has list of schools for the deaf for each state– https://ayjnihh.nic.in/special-school-hearning-state-ut-hearing
AudiVision
- Focus: blind, visually impaired, assistive technology
- Address: Mumbai
- Website: www.audivision.in
- Social Media:
- Contact Info:
- Services: app to read text data and recognize product name, company name, expiry date, etc
Blind Organization of India (2002)
- Focus: blind
- Address: Malwani, Malad (W), Mumbai
- Website: http://blindorg.com/
- Social Media:
- Contact Info: blindorgindia@gmail.com
- Services: mission: eradicate curable blindness
Bombay Foundation of Deaf Women (BFDW, 1983)
- Focus: deaf
- Address: Mumbai
- Website: www.bfdw1983.com
- Social Media:
- Contact Info: bfdw1983@gmail.com
- Services:
- training: vocational training, sign language, English, computers
- social work: helping needy deaf women
Central Society for the Education of the Deaf (1996)
- Focus: deaf
- Address: Mumbai
- Website: http://www.csedmumbai.org/
- Social Media:
- Contact Info: csedmumbai@gmail.com
- Services:
- school for the deaf, free education and support services for deaf infants and children
- CSD - Central School for the Deaf. Nursery to 4th Std. Medium of instruction includes English and Marathi. CSD is against the use of sign language.
- Maitri - Centre for Hearing Impaired Infants
- CIRC – Cochlear Implant Rehab Centre
- BERA – Unit for testing newborn babies
- Language and speech training
Happy Home and School for the Blind (1925)
- Focus: visually impaired
- Address: Worli, Mumbai
- Website: http://www.happyhomeschoolfortheblind.org
- Social Media: www.facebook.com/happyhomeschoolfortheblind
- Contact Info: happyhome_school@hotmail.com
- Services: school
Helen Keller Institute for Deaf and Deafblind (HKIDB) ***
- Focus: deaf, deafblind, blind
- Address: Mumbai
- Website: www.hkidb-mumbai.org
- Social Media:
- Contact Info: hkidb.mumbai@gmail.com
- Services:
- School for kids and young adults
- Offers D.Ed.Spl.Ed.(Db) – Diploma in Education Special Education (Deafblindness)
I Hear Foundation (2002)
- Focus: deaf, all ages
- Address: Mumbai 400007
- Website: http://www.ihearfoundation.org/
- Social Media:
- Contact Info: ihearfdn@gmail.com
- Services: Performs cochlear implant surgery for economically disadvantaged children and adults
India Inclusion Summit (2012)
- Focus: any disability, spread awareness and need for inclusion in mainstream society
- Address: Mumbai, Delhi, Kolkata
- Website: https://indiainclusionsummit.com
- Social Media: https://www.facebook.com/IndiaInclusionSummit/
- Contact Info:
- Contact Person: VR Ferose (Founder)
- Services:
- annual summit to bring together thought experts
- multiple projects using a partnership model
- Inclusion Fellowship – funding aimed at supporting entrepreneurs, artists, policymakers, and others working in the disability space to promote and embrace inclusion.
- Partner with corporates to support people & projects that lead to education, employment, and livelihoods for people with disabilities
- 2020 partnered with Bengaluru International Short Film Festival (BISFF) to launch a new section focusing on movies on inclusion.
- Inclusive Walkathon - people are paired with persons with disability and help each other to complete the walk
- Art For Inclusion
India Signing Hands (ISH) ***
- Focus: deaf community, news, education
- Address: Mumbai
- Website: https://indiasigninghands.com/
- Social Media:
- Contact Info: contact@indiasigninghands.com
- Services:
- ISH News (https://ishnews.tv; contact@ishnews.tv) – online news. Broadcasts Daily News and Entertainment online in Deaf-friendly accessible formats which are in Indian Sign Language (ISL), visual images with titles, voice-over and closed-captions
- Youtube: https://www.youtube.com/c/ISHNews
- Facebook: https://www.facebook.com/ISHNews/
- Twitter: https://twitter.com/ishnews_tv
- Instagram: https://www.instagram.com/ishnews/
- ISH Shiksha (https://ishshiksha.com/; hello@ishshiksha.com)– accessible education; courses
- Online ISL Course: https://ishshiksha.com/learn-indian-sign-language/
- Youtube Channel for Kids to learn basic ISL: https://www.youtube.com/@ishkids
Kamla Mehta School For The Blind, 1900
- Focus: visually impaired
- Address: Dadar, Mumbai
- Website:
- Social Media: https://www.facebook.com/kamlamehtaschooldadar/
- Contact Info:
- Services: primary and secondary school for the visually impaired
National Association For The Blind (NAB, 1952)
- Focus: visually impaired
- Address: Mumbai, with 22 state branches and 65 district branches across India, including Delhi, Kerala, Karnataka, Goa, Tamil Nadu, Maharashtra, Gujarat
- Website: https://www.nabindia.org.in/
- Social Media:
- Contact Info: contactus@nabindia.info
- Services: home-based programs for blind children with additional disabilities ; employment and placement services; braille press; producer and distributor of educational and recreational literature; nursery for the blind; home for aging blind; orientation and mobility training; research; legal aid; financial and medical assistance; advocacy
National Association For The Blind, Unit Maharashtra
- Focus: visually impaired
- Address: Nashik
- Website: http://nabunitmaharashtra.org/multiple-disability-centre/
- Social Media:
- Contact Info:
- Services:
Perkins School for the Blind India Foundation (or Perkins India) ***
- Focus: children with visual impairment and multiple disabilities
- Address: Mumbai
- Website: https://www.perkins.org/india/
- Social Media:
- Contact Info:
- Services:
- early intervention and school readiness
- See links to partner organizations https://www.perkins.org/india/our-programs-and-partnerships/
Rotary School for Deaf, Rotary Club of Dombivli
- Focus: deaf
- Address: Dombivli, Mumbai
- Website: www.rcdombivli.org
- Social Media: https://www.facebook.com/profile.php?id=100076388551193
- Contact Info:
- Services: deaf school, vocational training
Sanjeevan for Perfect Eyesight
- Focus: retinitis pigmentosa
- Address: Chembur, Mumbai
- Website: https://sanjeevan.in/
- Social Media:
- Contact Info:
- Services: RP treatment includes acupuncture
Sanjeevan Netralaya: Retina Care Center
- Focus: retinitis pigmentosa
- Address: Dadar, Mumbai with branches in Pune, Delhi, Bengaluru, Hyderabad, Ahmedabad
- Website: https://www.sanjeevannetralaya.com/retinitis-pigmentosa-in-treatment
- Social Media:
- Contact Info:
- Services: ayurvedic retinitis pigmentosa treatment
Signing Hands Foundation
- Focus: deaf
- Address: Navi Mumbai
- Website: https://www.signinghands.org/
- Social Media:
- Contact Info:
- Services: ISH Shiksha online education and ISH Kids
Sobti Parents Association (2004)
- Focus: visually impaired children with multiple disabilities
- Address: Thane and Andheri, Mumbai
- Website: http://www.sobtiparents.org/
- Social Media: https://www.facebook.com/SobtipatentsAssociation
- Contact Info: parents@sobtiparents.org , sobtiparentsassociation@gmail.com
- Services:
- part of the Home Visit Programme of National Association for The Blind (NAB)
- Vocational skills training
- Educational facilities
- Braille training
- Physiotherapy
- Counseling services for parents
- Early intervention therapy
- Respite Care Facility
Society for The Empowerment of The Deafblind (SEDB)
- Focus: deaf/deafblind adults
- Address: Pune
- Website: http://www.sedbindia.org/
- Social Media: https://www.facebook.com/SEDB-India-110363914530413/
- Contact Info: sedbindia@gmail.com; info@sedbindia.org
- Contact Person: Zamir Dhale, zamir@sedbindia.org
- Services: computer and mobility training for DBs; vocational training; assistive technology training
Sounds of Silence
- Focus: deaf
- Address: Mumbai and Delhi
- Website: http://www.soundsofsilence.in/
- Social Media:
- Contact Info:
- Services: training deaf people in language skills, IT professional skills (CRM, MIS, Digital Marketing)
Sreedhareeyam Eye of Ayurveda, Mumbai Branch
For details, see “Sreedhareeyam Eye of Ayurveda” under Kerala
The Victoria Memorial School for the Blind
- Focus: visually impaired
- Address: Tardeo, Mumbai
- Website: https://www.vmsb.org
- Social Media:
- Contact Info: vm@blindschool.net
- Services: school for visually impaired boys
ODISHA
Happy Hands School for the Deaf Odisha (2016)
- Focus: deaf
- Address: Sindurpur Odisha
- Website: https://happyhandsschool.in/
- Social Media:
- Contact Info:
- Services: deaf school using sign language
MEGHALAYA
Montfort Centre For Education (1995)
- Focus: deaf, blind, deafblind
- Address: Tura Meghalaya
- Website: https://turamontfort.org.in/
- Social Media: Facebook page
- Contact Info: https://turamontfort.org.in/pages/contact-us.html
- Services: school, vocational training, hostel, speech therapy, vision centre, Diploma in Special Education (Hearing Impaired), Diploma in Special Education (Visually Impaired)
PUNJAB
National Association for the Blind, Chandigarh (NAB Chandigarh)
- Focus: visually impaired
- Address: Chandigarh
- Website: http://www.nabchandigarh.com/
- Social Media:
- Contact Info:
- Services:
Patiala Association of the Deaf
- Focus: deaf
- Address: Patiala, Punjab
- Website:
- Social Media: https://www.facebook.com/padpatiala2017/
- Contact Info:
- Services:
Patiala School for Deaf/Blind (1967)
- Focus: deafblind, deaf, blind
- Address: Patiala, Punjab
- Website: https://www.patialaschool.org
- Social Media:
- Contact Info:
- Services:
- Patiala School for Deaf
- Patiala School for Blind
- Patiala School for Deafblind
- Patiala Early Intervention Centre for Deaf Infants
- Patiala Vocational Training Center
Bhagat Puran Singh School For The Deaf
- Focus: deaf
- Address: Pingalwara, Manawala Complex, Amritsar, Amritsar, Punjab - 143109,India
- Website: http://islpro.org/
- Social Media: https://www.facebook.com/PingalwaraDeaf/
- Contact Info: bpsschoolfordeaf@yahoo.in
- Services: school
TAMIL NADU
[Chennai]
Ability Foundation (1995)
- Focus: disabled, all ages
- Address: Chennai
- Website: https://www.abilityfoundation.org/
- Social Media:
- Contact Info:
- Services:
Chetana Charitable Trust ***
- Focus: disabled, all ages, assistive technology
- Address: Chennai
- Website: https://www.chetana.org.in
- Social Media: https://www.youtube.com/@teamchetana3105
- Contact Info:
- Contact Person: Dr. Namita Jacob
- Services:
- hosts an ARM Library (Accessible Reading Materials Library), free, different Indian languages
- develops and sells accessible books and games for children with disabilities
- conducts local awareness workshops
- works with people with disabilities, engineering faculty and rehabilitation professionals to create assistive devices and solutions that are affordable
Clarke School for the Deaf, Sadhana (1970)
- Focus: deaf, deafblind
- Address: Mylapore, Chennai
- Website: http://www.theclarkeschool.com/
- Social Media:
- Contact Info:
- Services: education, Diploma in Special Education (Deafblind)
Empower Conferences
- Focus: conference, assistive technology
- Address: Chennai
- Website: https://empowerconferences.in/
- Social Media:
- Contact Info:
- Services: organize annual EMPOWER technical conference series, with the objective of bringing together all stakeholders in the assistive technology sector, which includes researchers, user organizations, industries as well as policy makers. Issues tackled: creation, production and dissemination of assistive technology
Enability Foundation for Rehabilitation ***
- Focus: assistive technology
- Address: Chennai
- Website: https://enability.in/#/
- Social Media:
- Contact Info:
- Services:
- develops assistive technology to access education, communication, employment, daily living, recreation and rehabilitation
- partners with academic institutions, research organizations, disability organizations to produce their products
- see website for a list of products
Enabled.in
- Focus:
- Address: Chennai
- Website: https://enabled.in/
- Social Media:
- Contact Info:
- Services:
- digital accessibility solutions
- accessible news
- extensive list of government schemes for PwDs
- list of tax benefits related to PwDs
Sankara Eye Foundation, India (1977)
- Focus: eye hospital, education, vision research
- Address: Coimbatore
- Website: https://sankaraeye.com/
- Social Media: in LinkedIn
- Contact Info:
- Services:
- Sankara Eye Hospitals -- provide quality eye care services to the poor and the marginalised. Network of 13 eye care hospitals across India with branches in Andhra Predesh, Gujarat, Maharashtra, etc).
- Sankara Academy of Vision -- academic programs, trainings, conferences, clinical research
Sankara Nethralaya
- Focus: eye hospital, education, vision research
- Address: Chennai
- Website: https://www.sankaranethralaya.org
- Social Media:
- Contact Info:
- Services:
Special Needs Empowerment Hub (SNEH)
- Focus: all disabilities, e-commerce
- Address: Chennai
- Website: www.snehindia.com
- Social Media:
- Contact Info: specialneedproducthub@gmail.com
- Services: an e-commerce website where people with disabilities can sell their products
St Louis Institute for the Deaf and the Blind (1962)
- Focus: deaf and blind
- Address: Adyar, Chennai
- Website: http://stlouisdeafblindadyar.org/
- Social Media:
- Contact Info: info@stlouisdeafblindadyar.org
- Services:
- School for the deaf, School for the blind
- College offering B.C.A, B.Com and M.Com courses
Tamil Nadu State Federation of the Deaf
- Focus: deaf
- Address: Chennai
- Website:
- Social Media: https://www.facebook.com/TNSFD/
- Contact Info:
- Services:
Vision Research Foundation (1985)
- Focus: vision research
- Address: Chennai
- Website: https://visionresearchfoundation.org/
- Social Media:
- Contact Info: vrf@snmail.org
- Services: no publication on Usher nor RP from 2015-2018
TELANGANA
Deaf Enabled Foundation
- Focus: deaf, all ages
- Address: Telangana
- Website: http://def.org.in/
- Social Media:
- Contact Info: info@def.org.in. Phone: +91 97033 81112
- Services:
UTTAR PRADESH
Dr Basu Eye Hospital
- Focus: retinitis pigmentosa
- Address: Bareilly, Uttar Pradesh
- Website: https://www.drbasueyehospital.com/retinitis-pigmentosa-treatments/
- Social Media:
- Contact Info: care@drbasueyehospital.com
- Services: Ayurvedic treatment for Retinitis Pigmentosa
Noida Deaf Society (NDS, 2005)
- Focus: deaf
- Address: Noida, Uttar Pradesh. Serves north Indian states
- Website: https://noidadeafsociety.org
- Social Media:
- Contact Info:
- Services: vocational training (English communication, computers, workplace readiness, exam preparation), ISL training, training teachers, primary school, remedial education for class 4-12
WEST BENGAL
The Faculty of Disability Management and Special Education, Ramakrishna Mission Vivekananda University
- Focus: education, deaf, blind
- Address: West Bengal and Coimbatore (Tamil Nadu)
- Website: https://rkmvu.ac.in/ ; https://indiansignlanguage.org; https://vucbe.org/
- Social Media:
- Contact Info:
- Services:
- Special Education courses - B.Ed. Special Education (Visual Impairment / Hearing Impairement), M.Ed., PhD
- Indian Sign Language services = ISL Dictionary, ISL Courses
Template (year)
- Focus:
- Address:
- Website:
- Social Media:
- Contact Info:
- Services:
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