USH Bit 2: Lost Underwater? Let the Bubbles Lead

Swimming is fun and valuable, but underwater disorientation is common for people with Usher Syndrome types 1 and 3, due to balance and vision challenges.

• If you’re unsure which way is up, exhale gently to release air bubbles — bubbles always float upward, guiding you to the surface.
• Move slowly and stay calm to avoid worsening disorientation.
• In low visibility, pay attention to ear pressure:
• It increases as you go deeper.
• It decreases as you move toward the surface.
• Practice in shallow or familiar water to build confidence and stay safe.

Click here for details.

Click here to see all the USH Bits.

USH Bit 1: Wear a P-Cap

USH Bit 1:

Wear a P-cap (or baseball cap) indoors and outdoors to:

• Protect your face from overhead obstacles like open cabinet doors
  
  

• Protect your eyes from UV light that can damage the retina
  
  

• Cut down sun glare to improve daytime vision
  
  

• Reduce glare from bright indoor lights and prevent eye strain
  

Click here for details.

Click here to see all the USH Bits.

Introducing “USH Bits” — Quick, Practical Insights on Usher Syndrome

We’re excited to launch USH Bits — a new series of short, easy-to-read posts offering bite-sized facts and practical tips about living with Usher Syndrome, especially tailored for our community in India.

Think of it like YouTube Shorts, but in text form — simple to translate using Google Translate and accessible through Braille displays and screen readers.

Each USH Bit may include a link to a more detailed article for those who want to explore further. All posts will be collected on the dedicated USH Bits page, so you can easily find and revisit them anytime.

Conferences on Usher Syndrome in 2025-2026

We would like to inform you about 2 upcoming USH conferences which ​bring together USH researchers, doctors, and individuals. Whether you choose to attend a conference, or view conference proceedings, we hope these conferences will keep you up-to-date with the latest information on Usher syndrome.

International Symposium on Usher Syndrome

https://www.ush2025.org/en/

June 19-21, 2025

Netherlands

USH Connections Conference 2026 (14th USH Connections Conference)

July 17-19, 2026

Minneapolis USA and online

(Past conference presentations: https://www.usher-syndrome.org/events/ 

and https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html)

To stay informed of future USH conferences, latest research, clinical trials, etc, we invite you to sign-up in https://www.usher-syndrome.org/sign-up/ to receive the Grounded in Science Newsletter  (https://www.usher-syndrome.org/resources/grounded-in-science.html).