If you live in the USA and have been clinically diagnosed with Usher syndrome, you can avail of free genetic testing (to confirm the Usher diagnosis and to determine the exact Usher gene) through the "My Retina Tracker Genetic Testing Program" offered by Foundation Fighting Blindness.
Click here for details: https://www.fightingblindness.org/open-access-genetic-testing-program
[As of 2026 March 21]
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