TITLE: Divya’s Bollywood Dance - Aaya Re & Gud Nal Ishq (video)
AUTHOR: Divya Goel
GIST: Inspite of her profound hearing loss and vision loss due to USH3B, Divya is able to dance to the beat of the music, within a limited floor space, in front of an audience. How did she do it? Read the Description given with the video. If there is a will, there is a way!
LINK TO THE VIDEO: https://youtu.be/ERJvWI5BZoA?si=Ns5jWKbE7J61a39n
The video comes with a text Description and a transcript.
TITLE: "Unseen, Unheard, Unbroken" (video)
AUTHOR: Hayli Balgobin
GIST: Divya has USH3B. With the support of family members, she transformed from an angry and lonely individual to a motivated can-do go-getter.
LINK TO THE VIDEO: https://www.youtube.com/watch?v=FbqUPPYl-2U
The video has audio descriptions, corrected captions, and a transcript.
TITLE: The Hearing Side of Usher Syndrome
AUTHOR: Mark G. Hubers
DATE: 2026 March 23
LINK TO THE ESSAY: https://ushengineer.substack.com/p/the-hearing-side-of-usher-syndrome
GIST: Mark describes how the hair cells inside the cochlea works, what goes wrong with the hair cells in each USH type, what it actually sounds like from the inside, why USH individuals are exhausted quickly, hearing aids vs cochlear implants, etc.
A must-read for USH individuals and their family/friends!
If you live in the USA and have been clinically diagnosed with Usher syndrome, you can avail of free genetic testing (to confirm the Usher diagnosis and to determine the exact Usher gene) through the "My Retina Tracker Genetic Testing Program" offered by Foundation Fighting Blindness.
Click here for details: https://www.fightingblindness.org/open-access-genetic-testing-program
[As of 2026 March 21]
TITLE: The Supplement Nobody Mentioned
AUTHOR: Mark G. Hubers
DATE: 2026 February 23
LINK FOR THE ESSAY: https://ushengineer.substack.com/p/the-supplement-nobody-questioned
GIST: In 1993, a study on Retinitis Pigmentosa patients concluded that taking vitamin A supplements slowed vision loss. But in 2023, a follow-up study from the same institution concluded that vitamin A supplements are actually HARMFUL for USH2A, while for other types for Usher, vitamin A does NOT help. The 2023 follow-up study analyzed the findings separately by gene, while the 1993 study did not.
Read the full essay for details and a list of sources.
You can now read both this blog and the main Usher Syndrome Coalition website in any language.
We’ve added a Google Translate button at the top of every page, making it easier than ever to access and share information worldwide.
Explore here:
If you enjoy watching videos, joining video calls, or reading the news on your phone—but struggle because of low vision—a smartphone screen magnifier might make a big difference.
A phone screen magnifier is a physical device that works like a stand with a built-in magnifying lens. When you place your phone behind the lens, everything on the screen—text, images, and videos—appears bigger and easier to see.
These magnifiers come in many designs from various manufacturers. You can easily find them by searching online.
Cost: Rs200 and up
You can also explore more accessibility tools in our Products for the Deafblind in India page on our USH India Blog: https://ushindia.blogspot.com/p/products-for-deafblind-in-india.html
To see previous USH Bits: https://ushindia.blogspot.com/p/ush-bits.html
Dr. KM Kavana's webinar on " How Can Yoga and Naturopathy Help Families Affected by Usher Syndrome" is now available on the U...